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Crohn's Disease Before Surgery: Pre-Op List, History Sheet and Surgeon Questions

Keep a short pre-op log, bring one history and medicine sheet and write down your questions for the surgeon and the anesthesia team.

Crohn's Disease Before Surgery: Pre-Op List, History Sheet and Surgeon Questions

Crohn's Disease Before Surgery: Pre-Op List, History Sheet and Surgeon Questions

Updated 3 October 2026

At a glance

  • NIDDK says that even with medicines many people will need surgery for Crohn's disease, and that between 30% and 55% will require it within 10 years of diagnosis.
  • MedlinePlus advises bringing a list of medicines to every provider, including those bought without a prescription, vitamins and supplements.
  • The American College of Surgeons publishes questions to ask before an operation, including how your health history and medicines may change the risks.
  • A short dated log of symptoms before the operation gives the team a baseline for comparison.
  • Crohn's Journey keeps symptoms, results, medicines and visit notes on one dated history.

When surgery is on the calendar, the weeks before it fill up fast: tests, calls, forms, work, family. People with Crohn's disease often prepare while still having symptoms, and details slip. This guide covers a short pre-op log, one sheet that holds your history and medicines, the questions worth asking the surgeon and the anesthesia team, the logistics of the days around the operation and what to write down for the first week back. It is general information. Everything about your own operation and your own preparation belongs to your surgical team, whose instructions come first.

Why a pre-op log helps

NIDDK says that doctors most often recommend surgery for Crohn's disease to treat fistulas, abscesses, colorectal cancer, dysplasia, life-threatening bleeding, intestinal obstructions caused by scarring, and inflammation and symptoms that do not improve with medicines. It adds that surgery will not cure the disease, though it can treat complications and improve symptoms.

If you are heading into an operation, your surgeon knows why it was recommended. What they may not know is how you have been in the weeks since you last saw them.

A pre-op log records that stretch: pain, bowel entries, energy and anything new. It does not need to be complete. Two or three lines a day for the weeks before the date is enough.

The log has two jobs. It gives the team a baseline, so that recovery can be compared with how you were before. And it gives you something to read from when you are asked "how have you been?" in a pre-op appointment where your mind may go blank.

Start the log when the date is set, or today if the date is close. Put the operation date at the top and count the days down on the page, so you can see how long you have left.

In Crohn's Journey, the Daily check-in covers physical symptoms, emotional state, nutrition, sleep, exercise, medicines and outside factors on one date, which makes a ready-made baseline for the weeks before an operation.

What to record before the operation

Keep the entries short enough to write on a tired day.

Daily lines before a Crohn's operation

Crohn's Journey (part of Health Journey Labs) keeps three short lines each day before the operation:

Any new symptom, with the date it began: a fever, a new pain, a skin or joint change. MedlinePlus advises calling your surgeon right away if you get a cold, the flu, a fever or another illness in the few days before surgery, since the operation may need to be rescheduled. Write the call in the log, with the date and what you were told.

Appointments and tests, with dates: the pre-op visit, the anesthesia call, blood work, imaging.

Eating and drinking only as the team asked you to record it. Instructions for what to eat or drink before the operation come from your surgical team, and you follow theirs.

After two weeks, write a three-line summary at the top: the typical day, the worst day and what changed.

Bring the log to the pre-op visit. Ten lines of dated facts give your surgeon more than an hour of recall.

The Stool Tracker (Bristol Scale) in Crohn's Journey records stool form and urgency or bathroom load, and the Flare Tracker flags a day clearly worse than a usual week with onset, intensity and a short note.

The history and medicine sheet

MedlinePlus says that you know more about your symptoms and health history than anyone else, and that your surgeon depends on you to tell them what they need to know. It lists what to tell: reactions or allergies to medicines, foods, skin tapes, adhesive, skin cleansing solutions or latex, your use of alcohol or tobacco, problems you had before with surgery or anesthesia, blood clots or bleeding problems, recent dental problems and the medicines you take.

Put all of that on one sheet.

Crohn's items for the history sheet

For Crohn's disease, Crohn's Journey adds these items to the sheet:

For medicines, MedlinePlus advises bringing a list to every provider that includes medicines bought without a prescription and medicines you do not take every day, with the dose and how often you take them, plus vitamins, supplements and natural medicines.

Copy each entry as prescribed. Do not change anything yourself before an operation. The same page notes that your surgeon will say which medicines to take on the day of surgery, so write that question down and write the answer in the team's words.

Mark the sheet with the date, and bring copies to every pre-op appointment.

In Crohn's Journey, My Meds keeps medicine names, timing and medication entries, including biologics, steroids and other options you actually use, and My Labs stores the dates of results.

Questions for the surgeon and the anesthesia team

The American College of Surgeons publishes questions to ask before having an operation. Some of them matter more when you live with Crohn's disease.

Among them: what are the risks, benefits and possible complications of the operation, and will your health history and current medications mean they are different for you? What are your anesthesia options, and which is best considering your health history, prescription medications and vitamins or herbs? Will you need any blood tests or other tests before surgery? How will you be monitored during the operation? Will you need drains or other tubes when you leave the hospital? What can you expect for your recovery in terms of treatment, medication, diet and home care?

Crohn's questions to add before surgery

Crohn's Journey adds the Crohn's-specific questions that apply to you:

Write the questions in order of importance. Leave room under each for the answer, and write it in the clinician's words.

Take someone with you if you can, or ask whether the visit can be recorded or the answers sent in writing. A second listener often remembers what the first one missed.

Ask how long the stay is expected to be and what the team will want from you afterwards, such as a follow-up date. Write both.

If an answer is unclear, ask again and say what you understood. If you still do not understand, ask who can explain it.

Ask whether it is worth reviewing the medicine list together, and write the answer.

The My Care Team tracker in Crohn's Journey holds your clinicians with short visit notes for prep, during the visit and afterward, so the questions and the answers stay on the same page.

Tiredness and the weeks before

Waiting for surgery is tiring in its own way, and Crohn's disease adds its own tiredness. The Crohn's & Colitis Foundation reports that fatigue affects nearly 80% of IBD patients with active disease and 50% of patients in clinical remission.

For the log, write energy in a word and what the day held. Note how long tiredness lasted after an activity.

Count the better days each week. A count shows direction.

Mention it at the pre-op visit if tiredness is increasing or is beyond what you can manage. Several causes can overlap, and the team can help separate them.

NIDDK says doctors use blood tests to check for signs of anemia or inflammation, so ask the team whether any result bears on how you feel and when the next one is due.

Write down what you are leaving undone because of the tiredness, so that you can pass it to someone else or move it to after the operation.

In Crohn's Journey, the Daily check-in keeps energy, sleep and pain on the same date, so the weeks before the operation can be read as a single run.

Logistics for the days around the operation

The practical details are easy to lose. Put them on one page.

What goes on the logistics page

The logistics page in Crohn's Journey holds seven items:

Put the page where someone else can find it, and tell them where it is.

If any detail is unclear, ask the surgical team's office. They would rather be asked than guess.

Write a short note for the person who will be with you: your allergies, your medicines list, the name of your surgeon and the number of your gastroenterology clinic. If you cannot speak for yourself on the day, they can.

Pack what the hospital listed, and add your phone charger, the sheets and a pen. Put the question list where you will see it when you come round.

The Weekly Goals tracker in Crohn's Journey holds one small aim for the week, such as returning the leave form, and marks whether it held.

Mood and worry before surgery

Worry is common before an operation. Record it as you would any symptom.

Add a word for mood to the daily line. Write what you did and who you saw.

Write the questions that worry you, even small ones, and take them to the pre-op visit.

Tell a clinician if worry grows, keeps you up or starts to shape decisions. It is a normal topic for a pre-op visit.

Tell one person at home how you are feeling, using the log if it helps. How to explain Crohn's to family who cannot see it offers words for that conversation.

Write the thing you are most afraid of, in a line, and take it to the pre-op visit. A fear that is named can be answered, and a clinician hears this often.

Note what helped on a worried day, such as a call, a walk or a task finished, so you can find it again.

If you are thinking about hurting yourself, contact your local emergency number first and then a crisis line where you live (988 is an example in the United States). Let someone near you know.

Mood goes into the Daily check-in in Crohn's Journey with the physical entries, and the Daily Journal takes free-text or voice notes for worries that need a place to land.

The pre-op visit page

Pre-op visits can be short, and several clinicians may see you. One page serves all of them.

What goes on the pre-op visit page

Crohn's Journey gathers one page for the pre-op visit:

Tell each clinician at the start about your Crohn's disease, your earlier operations and any problem with anesthesia.

Write the answers as you go, and read back the main points before you leave.

Ask what to do if symptoms change before the date, and who to call. Write the answer in their words.

The guide on recent surgery with Crohn's disease covers the weeks after, and what to bring to a 15-minute Crohn's visit lists the wider packet.

Before the visit, the Doctor Report in Crohn's Journey exports a one-page summary of dates, symptoms and function from what you logged.

How Crohn's Journey can help

A folder with a few sheets will carry you through this. Should you want symptoms, medicines, results and visit notes to share dates over months, an app is worth a look, and the Crohn's apps guide sets out several to try.

Crohn's Journey is a personal Crohn's disease tracker from Health Journey Labs on the App Store and Google Play. Before an operation, it holds the daily baseline, medicines and questions in one place, so you walk in with dates in hand. Over months, the history shows how you were before and after, which gives each clinician dates to review. Below is what you can use and how each part helps.

Everything you log builds one history, and insights get stronger as it grows. Custom symptoms let you add your own labels.

We make Crohn's Journey at Health Journey Labs. This guide is educational and does not replace medical advice. Diagnosis, medication decisions, and urgent care decisions belong with your treating clinicians.

Sources

FAQ

How far ahead should I start the log?

As soon as the date is set. A few lines a day for the weeks before the operation give the team a baseline, and a short log started late is still worth more than none.

In Crohn's Journey, the daily entry takes a few taps, so the baseline builds without a separate notebook, and the weeks before the date can be read as one run by the team.

What should I tell the team about my medicines?

Bring a full list that includes medicines bought without a prescription, vitamins and supplements, with the dose and how often. MedlinePlus advises asking your surgeon which to take on the day of surgery.

My Meds in Crohn's Journey keeps medicine names, timing and medication entries with dates, so the list you hand over is built from what you recorded rather than from memory, with dates for each change.

Could I end up with a stoma?

Ask your surgeon directly what is planned and what could change, and write the answer in their words. NIDDK describes an ileostomy as one possible operation, and your own case is for your team.

The Daily Journal in Crohn's Journey takes free-text or voice notes, so the answer, your questions and the names of the people you told can be written down together with the date.

What if I get a cold or fever before the date?

Call your surgeon's office right away. MedlinePlus advises this because the operation may need to be rescheduled, and the team will say what to do. Write the call and the answer in the log.

The Flare Tracker in Crohn's Journey flags a day clearly worse than a usual week with onset, intensity and a short note, which gives the team the dates of a change.

What should I eat or drink before surgery?

Follow the written instructions from your surgical team, which depend on the operation and the day. If something is unclear, call the office and write down the answer in their words.

The Food Tracker in Crohn's Journey records meal or drink lines, read with pain, urgency, energy, stool and sleep, which helps if the team asks for a record of what you ate before the operation.

Does my gastroenterologist need to know?

Ask the surgical team and your gastroenterology team who will tell whom, and write the answer. Both teams are better placed with the same dates and the same medicine list.

My Care Team in Crohn's Journey holds your clinicians and short visit notes, so what each team knows, and when each was told, is written in one place that you can open at either clinic.

How do I plan time off work?

Write the dates your team gave you and ask what paperwork they can complete for your employer. Rules differ by country and employer, and a local adviser can tell you what applies where you live.

The Weekly Goals tracker in Crohn's Journey holds one small aim for the week and marks whether it held, which suits a paperwork step such as asking for a form or sending a date to your employer.

Can an AI companion help me prepare questions?

It can help you word questions and summarize your logged history, and you choose what to bring. Everything about your operation is for your surgical team, whose instructions come first.

Clara and the specialist companions in Crohn's Journey see your logged history, so the wording can use your own dates and entries instead of generic examples from someone else's operation, and you edit it.

I am anxious about the operation. What can I do?

Say so at the pre-op visit and tell someone you trust. If you are thinking about hurting yourself, contact your local emergency number first, then a crisis line where you live (988 is an example).

Once you are safe, the Daily check-in in Crohn's Journey records mood with the physical entries, so a clinician can see how they moved together, though it does not replace contact with help.

When should I call the team before the date?

Ask the team for their reasons to call, in their words, and write them on the logistics page. If symptoms change quickly or worry you, reach a clinician through local services without waiting for the date.

The Flare Tracker in Crohn's Journey marks the day with onset, intensity and a short note, so whoever answers the line gets the order of events and the date, and you do not need to rely on memory.

What should the person who comes with me know?

Give them a short note with your allergies, your medicines list, the name of your surgeon and the number of your gastroenterology clinic. If you are not able to talk on the day, they can give these details to the staff.

Crohn's Journey keeps the medicine list in My Meds and the clinicians in My Care Team, so the note for your companion can be copied from entries you already made instead of written from memory the night before.

How do I write down what the surgeon tells me?

Write each answer under its question, in the clinician's words, and read the main points back before you leave. If an answer is unclear, say what you understood and ask again, or ask who can explain it.

My Care Team in Crohn's Journey has room for notes during the visit and a review afterward, so the answers stay with the questions and can be read again when the next appointment comes.

Should I keep logging in the last days before surgery?

Yes, if you can. Two or three lines a day are enough, and the last days often matter most, because they show the team how you were just before the operation and give recovery a point of comparison.

The Daily check-in in Crohn's Journey takes those lines on the same form as earlier weeks, so the run up to the operation date reads as one stretch in the weekly and monthly views.

Why put the hospital logistics on one page?

The practical details are easy to lose when you are worried or tired. One page with the date, arrival time, contacts, leave dates and who is helping can be found by someone else if you are not able to look.

The Weekly Goals tracker in Crohn's Journey holds one small aim for the week, such as finishing that page or returning a leave form, and marks whether it held before the date arrives.

How do I protect my privacy when I keep a health log?

Use a screen lock on the device, avoid shared computers, and keep paper notes in a place only you can reach. Review what you wrote before you hand a copy to anyone.

Entries you make in Crohn's Journey are your own health notes, and the app's privacy policy describes how data is stored and handled. This article offers general information and is not medical advice.

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